1-15-10 Community E-Newsletter/Call

Hello. We’re looking to continue rolling into “Twenty Ten” with our second 30 minute OurMed Community call of the year. Catching you up and geting you involved in this exciting project! We promise to be a significant non-profit and that will contibute unbiased and critical information to medicine along with consumer knowledge on healthcare.

Please join us at 2pm Eastern time.

Agenda / Talking Points:

A: The OurMed Symbiosis Project B: OurMed (Content) Policy

C: Illumination! – NIH/NLM’s PubMed Licensing Policy D: Technology Update E: Holiday Fundraising Campaign Results – Insights from Richard Knipel F: Accounts with OurMed – Has everyone got one? What’s your ID? Have a Talk Page? G: Posting on OurMed.Org H: New Articles on OurMed - What to write about? I: Study Finds Financial Ties Between Clinical Study Leaders And Pharmaceutical Companies J: OurMed Pioneer Bios

Time: Friday (Today) : 2 - 2:30pm EST Call in Number : 712-775-7000 Passcode : 634011#

If you would like to opt out of these emails, please let me know. Thank you for your continued interest in the OurMed initiative--we couldn't make this happen without your participation and are grateful for you pitching in!

Greg Miller, ED at OurMed.Org (212) 740-1850 OurMed YouTube Video: http://www.youtube.com/watch?v=zqgYfFxEkLk

A: The OurMed Symbiosis Project:

Richard Knippel, President of the New York City Chapter of the Wikimedia Foundation, has created a five-part plan to jumpstart Ourmed by developing positive symbiotic relationships with existing open content communities, in particular the Wikipedia community, and then building on and improving health and medical topics derived from that content on Ourmed itself.

We would much appreciate the opportunity for Richard to share his plan today to:

1. Ensure our MediaWiki and WYSIWYG configuration is compatible with Wikipedia 2. Import high quality health and medical topics articles from Wikipedia: Featured articles and Good articles 3. Collaborate with Wikipedia:WikiProject Medicine and its members 4. Incentives for expansion of high quality content by Wikipedia editors through Wikipedia:Reward board and other models 5. Develop blue-ribbon Ourmed content based on expert review and improvements by health and medical professionals, with Flagged revisions system and Citizendium-like model

B: OurMed (Content) Policy

Dr. Stephen Press has had a lot of experience writing on Wikipedia and has founded his own Wiki website (Wikichiro.org). He has used a template to lay down a structure for a collaboration on OurMed's Content policy.

Three aspects of Online behavior are:  


 * 1) be bold
 * 2) be polite
 * 3) be referenced

'''C: Illumination! – NIH/NLM’s PubMed Licensing Policy: '''

Last week, we were unsure about the PubMed licensing policies and as PubMed might be a rich source to copy and paste articles, Dr. Stephen Press volunteered to reach out to the and find out their copyleft or copyright policies.

[ PubMed lets you search millions of journal citations and abstracts in the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and preclinical sciences. It includes access to MEDLINE® and to citations for selected articles in life science journals not included in MEDLINE. PubMed also provides access to additional relevant Web sites and links to the other NCBI molecular biology resources.

PubMed is a free resource that is developed and maintained by the National Center for Biotechnology Information (NCBI), at the U.S. National Library of Medicine (NLM), located at the National Institutes of Health (NIH).

Publishers of journals can submit their citations to NCBI and then provide access to the full-text of articles at journal Web sites using LinkOut.. – Source PubMed website. ]

Below is the reply to Stephens inquiry:

Dear Stephen Press:

NLM data are produced by a U.S. Government agency and include works of the United States Government that are not protected by U.S. copyright law but may be protected by non-US copyright law, as well as abstracts originating from publications that may be protected by U.S. or non-US copyright law.

NLM assumes no responsibility or liability associated with use of copyrighted material, including transmitting, reproducing, redistributing, or making commercial use of the data. NLM does not provide legal advice regarding copyright (http://www.copyright.gov/), fair use (http://www.copyright.gov/fls/fl102.html), or other aspects of intellectual property rights. Persons contemplating any type of transmission or reproduction of copyrighted material such as abstracts are advised to consult legal counsel.

Please note that if you would like to simply create a link to a PubMed citation or search strategy, you do not need permission. See our "Creating a Web Link to the Entrez Databases" instructions at http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=helplinks&amp;part=linkshelp

Also, if you would like to add a PubMed search box to your website see our "Add PubMed to Your Web Site" instructions at http://www.ncbi.nlm.nih.gov/entrez/query/static/link.html

We appreciate your interest in NLM products and services.

Leonore W. Burts NIH Contractor Librarian National Library of Medicine 8600 Rockville Pike Bethesda, MD 20894 custserv@nlm.nih.gov 1-888-346-3656 (within US) 301-594-5983 (international)

Original Message--

From: sjp@sport-dc.com Sent:01/13/2010 18:14:26 To: Custhelp@mail.nlm.nih.gov Subject: Copyrights and fair use

I am a member of the content committee for the Wiki-Clone website, called "Ourmed.org". I was asked to determine if we can re-copy articles on our site, published on Pub-med if we provide proper attribution? What complications are there? How to know which articles cannot be copied?

 D: Technology Update: 

If Vincent Navarro can tune into the call, we’d like to congratulate him on what seems to be the final tweaks of the Web Development Contract. We will be scheduling a design meeting this month to start the process to build the new website!

Professor Tony Wasserman (Carnegie Mellon, Silicon Valley) is fresh back from the Consumer Electronics Show in Las Vegas might be able to share some insight into the latest and greatest advances in technology.

Dr. Stephen Press, having recently become an OurMed Wiki adminstrator might be able to offer some insight into why God created the Sysop – (please note, this attempt at humor!) – in any case, he makes a really good case why we should upgrade the Mediawiki software.

E: Holiday Fundraising Campaign Results – Insights from Richard Knipel

As OurMed and every other non-profit struggles to get a footing in financing, it seems Wikipedia has it figured out. Richard Knippel, president of the NYC Chapter of the Wikimedia Foundation will offer some insights as to their amazing holiday campaign.

Wikipedia’s annual fundraiser ended on January 5th 2010, having raised just over $8 million. For the fiscal year to date, the total (through January 5) was almost $9.5 million. According to the Wikimedia Foundation's press release, in 2009 there were over 230,000 donations, and the average gift was $33. The fundraiser ended 10 days before the original projected end. Thank-you banners have run on the projects for a few days, linking to a letter from Jimmy Wales.

This was the largest fundraiser in Wikimedia's history, surpassing last year's fundraiser both in money raised ($2 million more this year) and number of donors (125,000 donations were received during 2008 and 2009). Statistics comparing the last three fundraisers can be found here.

Source: The Wikipedia Signpost (http://en.wikipedia.org/wiki/Wikipedia:Wikipedia_Signpost/2010-01-04/News_and_notes)

'''F: Accounts with OurMed – Has everyone got one? What’s your ID? Have a Talk Page?'''

OurMed's accounts are free, easy to get and really make you apart of the community. Be one of the early pioneers to own one.

Click here to get started now: http://ourmed.org/index.php?title=Special:Userlogin&amp;type=signup&amp;returnto=Main_Page

Once you have one, you can share your background with the community by filling out a bit about you on your Talk page.

G: Posting on OurMed.Org:

Now that you have an account--Use it to nudge the OurMed movement forward! You can write about nearly anything, just keep your comments about new ideas, health and medicine.--It's really important that OurMed gets off the ground using a communities collaborative approach to building it, just as Wikipedia did nine years ago.

Please click on this link to make a small post about whatever's on your mind. You can suggest articles, design or features that you'd like to see on the site. http://ourmed.org/index.php/New_Ideas_for_Site

Most Active Authors in the past month are: * Savealife * Gmiller * Drsjpdc * T1 * Vnavarro * Anthere1 * Pharos * Amankwatra * Sharad * JWSchmidt

 

''' H: New Articles on OurMed – What to write about? '''

Changes or additions can be made easily with our WYSYWIG editor (what you see is what you get), making it much easier than Wikipedia and cutting the volume ramp up rate to the new site significantly faster.

At times posting new material my be difficult to give attributions for so it may be easier to publish previously published work

Alternatively, you can choose content from one of the many free content ("copy left") sites such as much of the content on:

1) NIH's National Library of Medicine and PubMed 2) Wikipedia 3) Medpedia 4) GanFyd: (original medical wiki site that says Medpedia copied them and boasts 2000 site visitors per day) 5) Others?

To post a new article, simply goto: www.ourmed.org/index.php/ARTICLENAME

 I: Study Finds Financial Ties Between Clinical Study Leaders And Pharmaceutical Companies  [Source Reuters: Jan 12, 2010] Reuters reports that a new study has found "cancer researchers who design clinical trials, analyze or interpret the data, or play other key scientific roles are four times more likely to have financial ties to industry than their counterparts who have lesser roles in these studies, such as recruiting study subjects or collecting the data."

These clinical chiefs have the greatest influence on the outcome of studies, a report on the finding found. The authors, Dr. Steven Joffe of Dana-Farber Cancer Institute and other colleagues, published their work in the Journal of Clinical Oncology. In the study, "(64) percent of the authors -- 1,881 of 2,927 -- said they performed at least one key role in the study and 842 (29 percent) reported at least one financial tie" leading to potential to bias, Joffe said.

"Last year, the Institute of Medicine, one of the National Academies of Sciences that advises U.S. policymakers, issued a report stating, in essence, that doctors need to distance themselves from industry by voluntarily swear off lunches, drug samples and strictly disclose research funding to strengthen protections against financial conflicts of interest" (Brooks, 1/11).

 J: OurMed Pioneer Bios: 

Vincent Navarro (OURMED TECH) 212 444 2633 vnavarro@pipeline.com Research Specialist @ Weill Medical College Online Database Manager @ Scientists Without Borders

I have done basic science research for over 15 years in the area of prostate cancer. During this time I have had the privilege of working on the development of monoclonal antibodies targeting prostate cancer from concept through clinical trials. This has afforded me a keen insight into development process of therapeutic drugs. In addition, a strong interest in computers has seen me pursue a graduate degree in computer science in addition to my undergraduate in Chemistry. As a result I have designed and developed a clinical trials management system in my laboratory. I am currently the Online Database Manager for Scientists Without Borders. There, I am responsible for the administration of the database and development of the web portal.

Eileen McGinn, MPH, Certificate in Aging (OURMED CONTENT) qedeileen@aol.com

Worked in international health and development for 25 years, including several years living in Africa and Asia. Currently PT Research Manager for Nathan Kline Institute, working on the interrelation of poverty and mental health and health equity for persons with disabilities. PT tutor for immigrant high school students at Manhattan Comprehensive Night and Day High School. Volunteer work for many different agencies, including health, disability, immigrant, women's, peace, international. Have written for various websites on health issues. Especially interested in translating technical work into comprehensible language, community-based participatory research and the Capabilities Framework for development and justice.

Geoff Hayden, MD (OURMED CONTENT, RECRUITMENT) geoffhayden@gmail.com 615.479.6499 (Cell) I am a practicing Emergency Physician, splitting time between NYC and South Carolina. I have been in academic practice since 2005 (Residency at Vanderbilt University, Fellowship at University of Pennsylvania), with an emphasis on resident education and emergency ultrasound. My interest in OurMed.org stems from a dissatisfaction regarding the abysmal state of preventive care and a general lack of health care coverage in the U.S. I see OurMed.org as an essential resource to connect patients to health information and health providers. I imagine my role with OurMed.org in terms of producing content, recruiting other physicians for ongoing contribution, and assisting Greg with the development of a user-friendly, comprehensive clearinghouse of useful health care information. -- Geoffrey E. Hayden, MD, FAAEM, FACEP

Adjunct Clinical Professor Vanderbilt University Medical Center Department of Emergency Medicine Nashville, TN

Piedmont Medical Center Emergency Department Attending 222 South Herlong Ave Rock Hill, SC 29732

Vanessa Moore (OURMED RECRUITMENT) MVanellen@aol.com 914-665-4534 (home) 914-751-9758 (cell) Vanessa Moore is a native New Yorker who brings 7 years recruiting experience to the Ourmed recruitment effort. She would like to leverage her experience recruiting volunteers to Ourmed, a forward thinking and progressive approach to disseminating unbiased healthcare information to the public. Sh914-665-4534 (home) 914-751-9758 (cell) MVanellen@aol.com e has worked in both corporate and nonprofit settings including a consulting engagement for the Department of Education and most recently at the Westchester Independent Living Center, an advocacy group for people with disabilities. She studied Social Sciences at the Lincoln Center campus of Fordham University.

John Volpe (OURMED TECH) johnvolpe1@yahoo.com 516-221-4692

My background is primarilyin accounting, finance and business operations, primarily in the financial services industry. While I'm not a technical professional, I have participated in and managed numerous technical and business projects, primarily involving financial systems. I also worked as a management consultant for a Virginia based company that I did consulting work for the federal and state governments. I am currently retired. In addition to playing tennis and engaging in other physical activities, I volunteer my time and an Account Director with an NYC based organization that provides service grants in the form of a volunteer project team that manages strategy, financial, marketing and development projects for non-profits. My interest in this project is really from the perspective of someone who is a consumer of medical information and is interested in the efficient delivery of medical information to the public.

Greg Miller, ED at OurMed greg.miller@ourmed.org 212-740-1850

Have 17 years of Corporate Finance and Marketing experience for Fortune 500 companies including nine years abroad (Germany, England and Japan). I've been here in New York since 1996, always passionate about developing new brands, ideas and products. Did Marketing Analysis for ANA, a Japanese Airline, Finance for Cablevision's HD Satellite business and Revlon. Since 2005, I've been inspired by non-profits, created New York's Dance Parade and have worked on OurMed since the Fall of 2008. I'm inspired by the transparent, non-profit approach to the democratization of healthcare. OurMed has a small office at Columbia Medical Center's Audubon Business and Technology Building--Come by and visit us!

3960 Broadway (Entrance on 166th Street) Suite 301

o (212) 740-1850 c (917) 627-7155 greg.miller@ourmed.org Watch the OurMed Presentation: http://docs.google.com/present/edit?id=0Ad4ohgeyfGzCZGRoNnFuNW1fMzljMmh2OW5jdw&amp;hl=en

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OurMed's Board of Directors:

Florence Devouard, OurMed Board Member fdevouard@anthere.org

Florence Devouard served as one of the elected representatives to the Wikimedia Foundation Board starting June 2004, and was the Chair of the WMF Board from October 21, 2006 until July 16th, 2008. Florence was born in Versailles (France). She grew up in Grenoble, and has been living since then in several French cities, as well as Antwerpen in Belgium and Tempe in Arizona. She holds two masters, one in Agricultural Sciences (a 5-year degree in agronomical engineering (Diplome d'Ingénieur Grande Ecole) from ENSAIA and the other a postgraduate degree (DEA) in Genetics and Biotechnologies from INPL.She has been working in public research, first in flower plant genetic improvement, and second in microbiology to study the feasability of polluted soil bioremediation. She was employed until 2005 in a French company, to conceive decision-making tools in sustainable agriculture. She is now a consultant in Internet Communication Strategy. She joined the Wikipedia adventure in February 2002 and is known as a contributor under the pseudonym Anthere. Florence is 39, and lives in Clermont Ferrand with her husband Bertrand and her three children, Anne-Gaëlle aged nine, William eleven and Thomas two. On May 16 2008, Florence was made a knight in the French National Order of Merit, proposed by the Ministry of Foreign Affairs as "chair of an international foundation"

Alex Fotopoulos, OurMed Board Secretary alex@broadwaylawoffices.com

Alex Fotopoulos has served on the board since October 2008. He attended Rutgers College in New Brunswick, NJ and then received his Juris Doctorate degree from Southwestern Univesity in Los Angeles, California in 1990. He has experience as a litigation attorney and as an entrepreneur. He has held held positions as an attorney and as part of the management team of such high technology companies including AT&amp;T Wireless, T-mobile, Nextel, Metricom, GTE Internetworking as well as small local start-up ventures. He is a licensed Attorney in New York, New Jersey and California.

Stan Kachnowski, OurMed Board Chair swk16@hitlab.org

Stan Kachnowski is one of America’s distinguished scholars in healthcare information policy and management having taught e-health and healthcare e-business for nearly 20 years. He has authored over 100 scholarly papers and presentations for the world’s leading journals and societies in healthcare technology management, informatics and e-governance. In 2003 he was elected as a Fellow in the Royal Society of Medicine in the United Kingdom for his research with the National Health Service in using handhelds to track patient data. In 1996 he was elected to the US-based College of Healthcare Information Management Executives. Stan is currently a visiting professor at the Indian Institute of Technology, New Delhi, India.

Oleta McHenry, OurMed Board Treasurer Newsgirl_fl@hotmail.com

Oleta McHenry was born in Washington D.C. and grew up in Ohio. After graduating high school, she briefly attended Wright State University in Dayton, studying Political Science. She transferred to St. Petersburg College in St. Petersburg, FL and received her A.A. degree in Liberal Arts. Oleta earned her B.S. in Accounting from Florida Metropolitan University in Clearwater, FL in 2006.

Oleta worked for the Pulitzer prize winning newspaper, St. Petersburg Times as a circulation manager. After receiving her degree in accounting, she worked briefly in the insurance industry before joining the Wikimedia Foundation as the fulltime accountant of record. While at the Wikimedia Foundation, Oleta helped put in place accounting practices that would help the company in growth and development. She did not follow Wikimedia to San Francisco and now works for a large medical supply company managing the General Ledger for several regions within the United States. Oleta resides in St. Petersburg, FL and works as an accountant.